support groups
Our groups are administered by Zoom, Facebook, or in person at our conferences.
The mesothelioma experience is often daunting and isolating. In order to help patients, caregivers and family members cope, the Mesothelioma Applied Research Foundation offers several mesothelioma support groups. You can join our telephonic groups, which meet every month, or you can receive mesothelioma support through our Facebook groups on your own time, at all times of day or night.
Because we take confidentiality and privacy very seriously, Zoom links and call-in numbers for the telephonic support groups and invitations to the Facebook groups will only be sent to you after you register with us. To do so, please contact us at [email protected] or by phone at (703) 879-3819. In your email, please let us know your connection to the disease and the mesothelioma support group(s) you wish to join.
TELEPHONIC: Spousal Loss Conversation Group — Compassionate Conversations with Olga and Friends
This twice monthly telephonic conversation group is for individuals who have lost a spouse or partner to mesothelioma. It is hosted by Olga Pavlick and…
Patients on Active Treatment Group
ZoomThis group is for patients only. It is moderated by Julie White, RN, BSN, OCN. About Julie: Julie is an experienced oncology nurse with 18…
Better Together: Patient Support Group
ZoomThis monthly group is for patients only. It is moderated by Beth Flanzbaum, MSW, LICSW, and hosted by patient, Bill Ziegler, on the second Monday…
Patients Stronger Together Support Group
This monthly group is for patients only. It is moderated by Beth Flanzbaum, MSW, LICSW. About Beth: Beth received her master’s degree in social work…
Mesothelioma Applied Research Foundation Facebook groups include:
- Mesothelioma Straight Talk: General Discussion (by US nonprofit). This a group for all members of the mesothelioma community to discuss topics of interest, ask each other questions, and connect.
- Mesothelioma Straight Talk: Patient Support (by US nonprofit)
This group is for those who have been diagnosed with mesothelioma who wish to share and connect with others on this journey. It is a private room where all conversations are welcome, no subject taboo but will be held to a kind and gentle format in an attempt to alleviate some of the stress, celebrate some of the victories and seek comfort on those difficult days. - Mesothelioma Straight Talk: Caregivers – Advanced Disease (by US nonprofit)
This group is for caregivers of patients with advanced disease. It focuses on symptom management and treatment of advanced disease while still providing hope to those who are struggling with a multitude of caregiving challenges. - Mesothelioma Straight Talk: Caregivers – Early Disease (by US nonprofit)
This group is for caregivers of patients who are in the early stages of mesothelioma requiring little in symptom management, who wish to focus on hope, support and navigating through treatment and decision-making. - Mesothelioma Loss Support Group (by US nonprofit)
Losing someone you love at any time from anything is tragic enough, but losing someone to mesothelioma adds levels of emotion not experienced outside this unique circle. This group is a supportive community for everyone who has lost a loved one to mesothelioma.
Community Commenting Policy
By participating in our mesothelioma support groups, you agree to the below community commenting policy.
We reserve the right to delete posts containing any of the following elements:
- profanity
- personal attacks
- willful misinformation
- spam
- any advertising
- off-topic/irrelevant posts
- anything that infringes on copyrights or trademarks
- promoting illegal or questionable activities
- promoting treatments that have not been vetted in peer-reviewed respected scientific journals
- soliciting for other nonprofits/charities/personal fundraisers
Those who repeatedly violate this policy, will be removed.
