Search Results for: patient registry

A white paper documenting presentations and discussions from the Mesothelioma Patient Registry workshop, which was convened by the Mesothelioma Applied

With September’s passage of the appropriations bill, which included funding for a feasibility study, the preliminary steps in the development of

The Fiscal Year 2019 (FY19) funding bill for the U.S. Department of Health and Human Services (HHS) that Congress passed

As Congress prepares legislation that funds various federal department and agencies for next year, we ask that you to write

IMPORTANT: This is a new action! Even if you’ve already contacted your congressional representatives and they already cosigned the bill,

Last week, we announced the important news that Congressman Katko introduced in Congress a bill to create a mesothelioma registry.

We have big news and need your help! Today, the ‘Mary Jo Lawyer-Spano Mesothelioma Patient Registry Act of 2015’ was

(A version of this article was first published in the Mesothelioma Applied Research Foundation’s summer newsletter. The article has been

Since the beginning of the coronavirus pandemic, mesothelioma patients and their families have wanted to know how vulnerable they are

As we thought about our 2020 year in review, we were, of course, reminded that this year was a time