Caregivers of mesothelioma patients perform crucial duties and bear considerable burdens after a loved one’s diagnosis of mesothelioma. While resources for patients are often available at treatment centers and through organizations like the Mesothelioma Applied Research Foundation, caregivers report a lack of support. Understanding and identifying the needs of caregivers of mesothelioma patients is the first step in developing useful ways of helping them.
For this reason, the Mesothelioma Applied Research Foundation has partnered with researchers at Michigan State University to better understand the caregiver experience and identify potential ways to provide them with support.
The study, which is led by researchers at Michigan State University, will first conduct individual interviews and focus groups with caregivers of mesothelioma patients, with patients, and with those who have previously cared for a mesothelioma patient who has since passed away. Later, it will also conduct online support groups for current or former caregivers. The study is currently enrolling participants for the interview phase.
WHO IS ELIGIBLE TO PARTICIPATE IN INTERVIEWS:
- Caregivers of mesothelioma patients
- Mesothelioma patients
- Former caregivers of mesothelioma patients
WHAT CAN PARTICIPANTS EXPECT:
In this first part of the study, Michigan State University researchers will conduct 1-hour virtual interviews individually with each participant.
A $25 gift card will be provided to each participant who completes the interview.
HOW TO PARTICIPATE:
Complete this brief form: Interview participation survey
FUNDING:
This study is funded by the Department of Defense’s Congressionally Directed Medical Research Program.
If you have any questions about this study, please contact [email protected].
