As part of its patient support services, the Mesothelioma Applied Research Foundation provides an array of support groups. Some are administered over the phone while others are virtual and delivered via Facebook. (Before Covid prevented us from gathering, we also held in-person support groups at the various conferences organized by the Foundation, and we look forward to returning to that soon.) Last week, our Facebook groups received a make-over. If you are a member of any of these groups please note the name changes. Also, if your situation changed since you first joined the group and you wish to change groups, please contact Jordan Fingerhut at [email protected] or via Facebook Messenger.
Old name: Cure Mesothelioma – Mesothelioma Applied Research Foundation
New name: Mesothelioma Straight Talk: General Discussion (by US nonprofit)
This a group for all members of the mesothelioma community to discuss topics of interest, ask each other questions, and connect.
Old name: Mesothelioma Pleural and Peritoneal Support (Warriors Voices)
New name: Mesothelioma Straight Talk: Patient Support (by US nonprofit)
This group is for those who have been diagnosed with mesothelioma who wish to share and connect with others on this journey. It is a private room where all conversations are welcome, no subject taboo but will be held to a kind and gentle format in an attempt to alleviate some of the stress, celebrate some of the victories and seek comfort on those difficult days.
Old name: Mesothelioma Caregiver Conversations and Support
New name: Mesothelioma Straight Talk: Caregivers – Advanced Disease (by US nonprofit)
This group is for caregivers of patients with advanced disease. It focuses on symptom management and treatment of advanced disease while still providing hope to those who are struggling with a multitude of caregiving challenges.
New group: Mesothelioma Straight Talk: Caregivers – Early Disease (by US nonprofit)
This group is for caregivers of patients who are in the early stages of mesothelioma requiring little in symptom management, who wish to focus on hope, support and navigating through treatment and decision-making.
NO CHANGES: Mesothelioma Loss Support Group (by US nonprofit)
Losing someone you love at any time from anything is tragic enough, but losing someone to mesothelioma adds levels of emotion not experienced outside this unique circle. This group is a supportive community for everyone who has lost a loved one to mesothelioma.
If you are not a member of these groups but are a patient, caregiver/family member, or if you are grieving the loss of a loved one, you are welcome to join them and participate. Please contact Jordan Fingerhut at [email protected] or via Facebook Messenger.
